Resilience of Individuals Living with Sickle Cell Disease during the COVID-19 Pandemic

Principal Investigator(s):  View help for Principal Investigator(s) Vence Bonham, United States Department of Health and Human Services. National Institutes of Health

Version:  View help for Version V1

Name File Type Size Last Modified
COVID INSIGHTS Resilience deID merged dataset_29March2022.xlsx application/vnd.openxmlformats-officedocument.spreadsheetml.sheet 69.3 KB 03/29/2022 10:39:AM

Project Citation: 

Bonham, Vence. Resilience of Individuals Living with Sickle Cell Disease during the COVID-19 Pandemic. Ann Arbor, MI: Inter-university Consortium for Political and Social Research [distributor], 2022-03-29. https://doi.org/10.3886/E166321V1

Project Description

Summary:  View help for Summary
This project studied 97 adults living with sickle cell disease (SCD) in the US. Data was merged from two parent studies (INSIGHTS Study NCT02156102; Living with SCD in the COVID-19 Pandemic Study NCT04417673) in order to focus on changes over time in resilience, perceived stress, emotional distress, and physical and mental health. Results showed that the psychological resilience of our study cohort had significantly decreased (0.19, p=0.01) over time. Resilience during the pandemic was associated with better mental health and physical health and lower perceived stress and emotional distress. 

Scope of Project

Subject Terms:  View help for Subject Terms sickle cell disease; resilience; stress

Methodology

Scales:  View help for Scales Brief Resilience Scale
Cohen Perceived Stress
ASCQ-Me Emotional Impact Subscale
PROMIS Global Mental and Physical Health Scales

Related Publications

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Published Versions

V1 [2022-03-29]

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Dublin Core

DDI 2.5

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