Name File Type Size Last Modified
Data Files.zip application/zip 1.2 MB 06/20/2025 08:42:AM
Data Summary.xlsx application/vnd.openxmlformats-officedocument.spreadsheetml.sheet 10.9 KB 06/20/2025 08:42:AM

Project Citation: 

Ipsen, Catherine. Building Networks to Expand Living Well Delivery . Ann Arbor, MI: Inter-university Consortium for Political and Social Research [distributor], 2025-06-20. https://doi.org/10.3886/E233683V1

Project Description

Summary:  View help for Summary
This study examines the effectiveness of the Living Well in the Community program, a health promotion initiative for people with disabilities. The program aims to improve self-management skills and reduce secondary conditions through a series of structured sessions. Data collection spanned from May 2020 to June 2023, capturing the impact of the COVID-19 pandemic on participants' health and community engagement.

Anonymized data files are provided in both Excel and SPSS formats. The Excel files describe the cleaning process but lack survey response options, while the SPSS files includes comprehensive data labels.

Please note that the paper has not been published yet, and all content in this data file consists of the collected data without an accompanying published paper. 
Funding Sources:  View help for Funding Sources National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR) (90RTCP0002)

Scope of Project

Subject Terms:  View help for Subject Terms Disabilities; Health Promotion; Self-Management; Secondary Conditions; Community Engagement; COVID-19 Impact
Geographic Coverage:  View help for Geographic Coverage United States, with participants recruited from Centers for Independent Living across thirteen different states.
Time Period(s):  View help for Time Period(s) 1/2020 – 1/2023 (2020-2023)
Collection Date(s):  View help for Collection Date(s) 5/20/2020 – 5/16/2023 (May 20, 2020 - June 16, 2023)
Universe:  View help for Universe
Adults with disabilities in the United States.
Data Type(s):  View help for Data Type(s) survey data

Methodology

Response Rate:  View help for Response Rate 120 participants responded to the pre-survey, and 70 (58.3%) completed the post-survey.
Sampling:  View help for Sampling
Participants were recruited from Centers for Independent Living across thirteen different states.
Data Source:  View help for Data Source
Surveys (pre- and post-intervention)
Collection Mode(s):  View help for Collection Mode(s) web-based survey
Scales:  View help for Scales
PROMIS-29 Profile v2.1, Community Engagement Questionnaire, Healthcare Utilization measures
Unit(s) of Observation:  View help for Unit(s) of Observation Individual participants
Geographic Unit:  View help for Geographic Unit National (thirteen different US states represented in the sample)

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