Aging Concerns, Challenges, and Everyday Solution Strategies (ACCESS) Phase 2

Name	File Type	Size	Last Modified
Data			03/18/2025 09:47:PM
Technical-Reports			03/24/2025 02:42:PM

Project Citation:

Rogers, Wendy. Aging Concerns, Challenges, and Everyday Solution Strategies (ACCESS) Phase 2. Ann Arbor, MI: Inter-university Consortium for Political and Social Research [distributor], 2025-03-31. https://doi.org/10.3886/E220941V1

Project Description

Summary: This study was conducted as part of the Rehabilitation Engineering Research Center on Technologies to Support Aging among People with Long-Term Disabilities (RERC TechSAge). The Aging Concerns, Challenges, and Everyday Solutions (ACCESS) project, a mixed-methods investigation into the daily challenges faced by individuals aging with long-term disabilities. Participants completed questionnaires and a structured interview exploring the nature and distribution of challenges with activities at home and in the community, as well as their response strategies to manage these challenges. ACCESS data are being used to develop a taxonomy of everyday support needs and provide guidance for the design of supportive technologies for this understudied population. The current dataset is for phase 2 of the ACCESS study (N=180) which focused on three target populations: (1) individuals who are late-deafened and use English as their primary language; (2) individuals with multiple sclerosis (MS); and (3) individuals with vision loss (due to macular degeneration or glaucoma). There were 60 individuals in each group.

Funding Sources: National Institute on Disability, Independent Living, and Rehabilitation Research (90REGE0006-01-00)

Scope of Project

Subject Terms: interview; survey

Geographic Coverage: United States

Time Period(s): 7/2021 – 6/2023

Collection Date(s): 7/2021 – 6/2023

Universe: Three distinct target populations of adults aging with long-term disability: (1) individuals who are late-deafened and use English as their primary language; (2) individuals with multiple sclerosis (MS); and (3) individuals with vision loss (due to macular degeneration or glaucoma).

To be eligible for this study, participants had to meet the following general inclusion criteria: be between the ages of 60 and 80; able to communicate in English via phone or Zoom video; live in the United States; and pass the Telephone Interview for Cognitive Status-Modified (TICS-M) (> or equal to 32).

Participants were also required to meet the criteria for one of the three target groups (late-deafened, MS, vision loss) and have been living with that diagnosis for at least 10 years.

Data Type(s): survey data

Methodology

Response Rate: Of the 428 individuals who expressed interest in the study, 231 completed the screening (via phone or Zoom). Of these, 41 were excluded due to ineligibility (n=40) or lack of interest (n=1). 190 individuals were enrolled in the study; of these, data were excluded for 10 participants for reasons including: piloting/materials testing (n=3), unable to reach (n=3), no longer interested (n=1), failure to complete questionnaires (n=1) poor interview audio recording (n=1), and family emergency (n=1). The final sample includes 180 participants (42% response rate).

Sampling: Convenience sample

Collection Mode(s): mail questionnaire; mixed mode; other; telephone interview; web-based survey

Scales:

Several Likert-type scales were used. See technical report for information on source materials and the full assessments (Remillard, Koon, Bayles, Mumma, Singleton, & Rogers, 2023).

Unit(s) of Observation: individuals

Geographic Unit: United States

Related Publications

Download this project

Published Versions

V1 [2025-03-31]

Export Metadata

Dublin Core

DDI 2.5

Report a Problem

Found a serious problem with the data, such as disclosure risk or copyrighted content? Let us know.

This material is distributed exactly as it arrived from the data depositor. ICPSR has not checked or processed this material. Users should consult the investigator(s) if further information is desired.