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PMDR-Data-Codebook.xlsx application/vnd.openxmlformats-officedocument.spreadsheetml.sheet 71.3 KB 04/09/2019 12:21:PM
PMDR-Survey_approved160520.pdf application/pdf 772.1 KB 04/09/2019 12:21:PM
PMDR-coding-with-labels.do text/x-stata-syntax 91.4 KB 04/09/2019 12:22:PM
PMDR-public-dataset.dta application/x-stata 253.3 KB 04/09/2019 12:21:PM
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Project Citation: 

Ostrow, Laysha. Psychiatric Medication Discontinuation and Reduction. Ann Arbor, MI: Inter-university Consortium for Political and Social Research [distributor], 2019-05-14. https://doi.org/10.3886/E109272V1

Project Description

Summary:  View help for Summary The survey asks people who have undergone long-term psychiatric treatment about their decision to discontinue psychiatric medications, whether or not they did. Participants include those who have attempted to discontinue the use of one or two psychiatric medications in the past 5 years. Medications must have been taken for at least 9 months. The survey asked questions about diagnosis, treatment history, reasons for discontinuing medications, withdrawal effects, coping skills and self care, social supports, and relationships with prescribing health professional and other treatment providers. The survey also gathered information on demographics, general wellness, and medical and psychiatric history. Data were collected in June 2016 using an internet survey on a sample of 250 adults (aged 18+) with a lifetime psychiatric diagnosis of schizophrenia, schizoaffective disorder, schizophreniform disorder, psychosis not otherwise specified (NOS), bipolar disorder I, bipolar disorder II, bipolar disorder NOS, or major depressive disorder. The sample was recruited by sending recruitment flyers and social media announcements to electronic mailing lists, mental health agencies, university-based counseling and wellness centers, advocacy organizations, former and current service users and service providers across the United States.
Funding Sources:  View help for Funding Sources Foundation for Excellence in Mental Health Care

Scope of Project

Subject Terms:  View help for Subject Terms psychiatric services; medications; mental health
Geographic Coverage:  View help for Geographic Coverage United States
Time Period(s):  View help for Time Period(s) 6/1/2016 – 7/4/2016
Collection Date(s):  View help for Collection Date(s) 6/1/2016 – 7/4/2016
Universe:  View help for Universe The target population was individuals aged 18 and over who had taken psychiatric medication for more than nine months and had discontinued or attempted to discontinue medication within the past five years.
Data Type(s):  View help for Data Type(s) survey data

Methodology

Response Rate:  View help for Response Rate A total of 742 participants accessed the survey; 738 participants consented to participate. Of these, 282 (38.2%) met the inclusion criteria. Thirty participants (10.6%) dropped out and two reported on a non-eligible medication, leaving a total sample of 250 (overall response rate = 33.9%).
Sampling:  View help for Sampling  Non-probability purposive sample
Collection Mode(s):  View help for Collection Mode(s) web-based survey
Scales:  View help for Scales Several Likert-type scales were used.
Unit(s) of Observation:  View help for Unit(s) of Observation Individuals

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