Effects of the WHO's 8-step Wheelchair Service Delivery Process on Wheelchair Users in El Salvador: A Cohort Study, 2019

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Data-Collection			07/14/2022 11:51:AM

Project Citation:

Pearlman, Jonathan . Effects of the WHO’s 8-step Wheelchair Service Delivery Process on Wheelchair Users in El Salvador: A Cohort Study, 2019. Ann Arbor, MI: Inter-university Consortium for Political and Social Research [distributor], 2022-07-15. https://doi.org/10.3886/E173201V1

Project Description

Summary:

The Effects of the WHO's 8-step Wheelchair Service Delivery Process on Wheelchair Users in El Salvador: A Cohort Study, 2019 includes data collected in El Salvador by the El Salvador University. The broad goal of this study was to contribute to the body of evidence investigating the outcomes related to providing manual wheelchairs according to the WHO 8-step service delivery process in less-resourced settings. The specific objectives were to test the hypotheses that wheelchair-related health, wheelchair skills, wheelchair use, poverty probability, and quality of life would improve; and that the number of wheelchair repairs required, adverse events, caregiver burden, and the level of assistance provided would decrease after the delivery of manual wheelchairs following the WHO 8-step wheelchair service delivery process.

The dataset includes age, gender, diagnosis/type of disability, type of assistive device (e.g., wheelchair), and use of an assistive device. Additionally, data collected include the following measures from structured questionnaires translated into Spanish which included the same predetermined questions to all participants in the same order, and in many cases, a standardized scoring system: ISWP Minimum Uniform Dataset (MUD) which included demographic, clinical and wheelchair-related questions, Wheelchair Skills Test Questionnaire (WST-Q), Wheelchair Maintenance Training Questionnaire (WMT-Q), Breakdowns and Adverse Consequences Questionnaire (BAC-Q), Poverty Probability Index (PPI) for El Salvador, WHO Quality of Life Questionnaire – Brief version (WHO QOL-BREF), and the MIT-Wheelchair-related Health Questionnaire.

Funding Sources: Google.org (322068)

Scope of Project

Subject Terms: assistive devices; disabilities; disabled persons; health care services; quality of life; World Health Organization

Geographic Coverage: El Salvador

Time Period(s): 1/2019 – 11/2019

Collection Date(s): 1/2019 – 11/2019

Universe: Children and adults in El Salvador who were on a waiting list to receive a wheelchair and related services from select rehabilitation centers.

Data Type(s): clinical data; survey data

Methodology

Sampling: A consecutive sampling method was used to select participants using the waitlists at the 11 rehabilitation centers. Wheelchair users and their caregivers were recruited. Inclusion criteria for wheelchair users were being a person with a mobility limitation requiring a wheelchair as a primary means of personal mobility, waiting to receive a new wheelchair from any of the participating wheelchair service delivery centers, 18 years of age or older, having the cognitive and verbal abilities required to respond to the study questions or a proxy who could respond on his or her behalf, and having access to a cellphone. Wheelchair users who required postural support to sit upright were excluded. Inclusion criteria for caregivers were being a person assisting the wheelchair user with ADLs, 18 years of age or older, being the primary caregiver, and being willing to participate in the study.

A total of 247 wheelchair users and 119 caregivers were recruited.

Collection Mode(s): face-to-face interview; on-site questionnaire; telephone interview

Unit(s) of Observation: individual

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Published Versions

V1 [2022-07-15]

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